Two Steps Forward, Three Steps Back

Good morning. Not the best update right now. We had to stop Zane’s breathing trial and put him back on full vent again late last night. He was just getting too tired but he did go all day. Then all last night, he was coughing and fidgety that now he’s back on a sedative. Going backwards. We need a miracle and I need 5 minutes or more at a time of continuous sleep. My family left to go back to Orlando this morning and I’m feeling so defeated. 😢😭😢😭